Clinical trials play a pivotal role in advancing medical research and shaping the future of healthcare by evaluating the safety and efficacy of new treatments andinterventions. However, ensuring diverse participation in these trials is essential to truly understand how treatments work across different populations. By includingindividuals from diverse backgrounds, including various racial, ethnic, socioeconomic, and…
If patient-oriented research is intended to focus on priorities that are important to patients and produce information that is truly taken up and used to improve health care practice, therapies and policies, a strong foundation for ensuring successful collaboration must be laid
This How-to Guide has been developed for anyone who needs to be involved in the implementation of Patient Engagement in the design of a clinical trial protocol.
The Community Readiness Model is a tool that can help communities determine how ready they are to deal with a specific issue. This project aimed to adapt, pre-test and use the CRM to identify how ready three communities (Arviat, Clyde River and Kugluktuk) are to deal with HIV.
This guide includes language suggestions for communicating about HIV and related topics. While it was originally designed to help NIAID staff communicate with empowering rather than stigmatizing language, especially as it relates to HIV, it was quickly recognized that it has value beyond NIAID.
Developed by the National Institutes of Health, the Centers for Disease Control and Prevention, and the HIV Medicine Association of the Infectious Diseases Society of America Panel on Guidelines for the Prevention and Treatment of Opportunistic Infections in Adults and Adolescents with HIV—A Working Group of the NIH Office of AIDS Research Advisory Council (OARAC)
This clear language document was designed to remove language barriers about common phrases, terms, and diseases that are discussed within BCCDC projects and applicable to data requests that might be considered by community.
This glossary provides lay language definitions for frequently used health research terms.